Saturday, January 14, 2012

Cellcept on hold

Poor kid.  He got a cold sore about two days after seeing the doc.  I had him keep taking the Cellcept for a few days, but on Monday this past week, I gave the doc a call and he said to stop taking it until the cold sore started healing.  Well the cold sore started healing so we started it again. He got one, maybe two, doses in and now he has a head cold and is coughing lots so the Cellcept is on hold again.  We are giving him Vit C to help boost his healing.  Hopefully he can kick this cold quickly so we can restart the Cellcept.  Cellcept is an anti-rejection med, given to transplant patients, so it lowers their immunity to avoid the body rejecting the new organ.  Even though Jacob is not taking it for a transplant, it still lowers his immunity and this is why he got the cold sore and now cold.  This is also why the med is on hold so his immunity can kick in and hopefully get rid of the cold!

Clinic update (January 3rd)

Jacob had his clinic appointment on the 3rd.  Not much new.  His urine is still spilling protein and blood.  This time the doctor did not say he expected it.  Hopefully the Cellcept starts kicking in soon, if it will at all.  He did gain a little weight, but not too bad.  His blood pressure is the lowest it has ever been and the doc was very happy with that.  110/62, I believe.  Overall, a pretty much status quo update.  We get to skip a week and go back in three weeks instead of two!

Sunday, January 1, 2012

Happy New Year!

Wow, this past week between Christmas and New Year's has flown by!  We mostly did a lot of lounging around, doin' a bunch of NOTHING!  Loved it! Our oldest went back to school before the new year so it was just the four of us to celebrate.  We went to a friend's house for a bonfire.  It was fun, well Joe and I had fun.  The kids were not thrilled, but oh well. 

Jacob's mood is improving so much since the Prednisone is now decreased to 5mg.  Praise the Lord!  It is so nice to see him smile and laugh again.  He is still sticking the the low sodium diet and most days comes in way below his 2500mg limit.  We had wanted to get him on an overall healthier diet, but unfornately, we have slacked off this holiday season.  This year is the year for much change.  I read from a newsletter of a favorite author that she picks a word for the year.  Well, this year I am going to do the same for our family.  This year that word is "organize".  In regards to Jacob, this means organize health.  This is a family goal actually.  I think it is time that we all become just a little bit more healthy.  A better diet and more exercise for all of us.  That is our goal.  I am hoping that with a better diet that we can get this Berger's disease in remission.  I do not want to rely on medication alone.